Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group.
Publication Title
Seminars in arthritis and rheumatism
Document Type
Article
Publication Date
6-7-2021
Keywords
washington; seattle; swedish
Abstract
OBJECTIVE: A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1.
METHODS: A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework.
RESULTS: Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%).
CONCLUSION: Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps.
Clinical Institute
Women & Children
Specialty/Research Institute
Rheumatology
Specialty/Research Institute
Allergy & Immunology
Specialty/Research Institute
Pediatrics
