Title
Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group.
Document Type
Article
Publication Date
6-7-2021
Publication Title
Seminars in arthritis and rheumatism
Keywords
washington; seattle; swedish
Abstract
OBJECTIVE: A working group was established to develop a core domain set (CDS) for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO) following the OMERACT filter 2.1.
METHODS: A scoping review to identify disease-related manifestations was performed, followed by a special interest group (SIG) session at OMERACT2020 to begin the CNO/SAPHO CDS framework.
RESULTS: Candidate items were identified from the scoping review and most fell under Life Impact and Pathophysiology Manifestation core areas. A SIG agreed on the need to develop a CDS for CNO and SAPHO (100%) and for children and adults (91%).
CONCLUSION: Based on candidate items identified, qualitative research and Delphi surveys will be performed as next steps.
Clinical Institute
Women & Children
Department
Rheumatology
Department
Allergy & Immunology
Department
Pediatrics
Recommended Citation
Oliver, Melissa; Jayatilleke, Aruni; Wu, Eveline; Nuruzzaman, Farzana; Aguiar, Cassyanne; Lenert, Aleksander; Romano, Micol; Simonini, Gabriele; Shah, Samir; Hollander, Matthew; Alsaleem, Alhanouf; Fox, Emily; Theos, Alexander; Ramanan, Athimalaipet V; Schnabel, Anja; Lapidus, Sivia; Tucker, Lori; Onel, Karen; Ozen, Seza; Dedeoglu, Fatma; Ferguson, Polly J; Shea, Beverley; Akikusa, Jonathan; Hedrich, Christian; Mease, Philip; and Zhao, Yongdong, "Establishing core domain sets for Chronic Nonbacterial Osteomyelitis (CNO) and Synovitis, Acne, Pustulosis, Hyperostosis, Osteitis (SAPHO): A report from the OMERACT 2020 special interest group." (2021). Articles, Abstracts, and Reports. 5044.
https://digitalcommons.providence.org/publications/5044
